September 2015
Together we can Cure Duchenne!
Research
Duchenne Research Highlights from MDA Conference

CureDuchenne Ventures LLC Provides $1 Million to Myotherix to Advance Promising Research to Treat Duchenne Muscular Dystrophy

CureDuchenne Ventures LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have invested $1 million in MyoTherix Inc., a biotechnology company focused on developing novel therapeutics for the treatment of Duchenne and other muscular dystrophies...

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Duchenne Research Highlights from MDA Conference

BioMarin Launches kNOWyourDuchenne, Comprehensive Program for Patients With Duchenne Muscular Dystrophy to Understand Their Genetic Mutation

BioMarin Pharmaceutical Inc. (Nasdaq:BMRN) today announced the introduction of kNOWyourDuchenne, a program to help families and physicians obtain and interpret genetic testing for patients with Duchenne muscular dystrophy...

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Duchenne Research Highlights from MDA Conference

Researchers Create New Mouse Model for Duchenne with Duplication of Exon 2

Dr. Kevin Flanigan and his team at the Flanigan Lab at Nationwide Children’s Hospital are hard at work researching duplication mutations. They have created a new mouse model for Duchenne muscular dystrophy with a duplication of exon 2...

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Catabasis Pharmaceuticals Receives Rare Pediatric Disease Designation from FDA for CAT-1004 for the Potential Treatment of Duchenne Muscular Dystrophy

Catabasis Pharmaceuticals, Inc. CATB, -3.30% a clinical-stage drug development company built on a pathway pharmacology technology platform, today announced that the U.S. Food and Drug Administration (FDA) has granted Rare Pediatric Disease Designation to CAT-1004 for the treatment of Duchenne muscular dystrophy (DMD)...

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CureDuchenne Cares
Abilities Expo Video Blog

CureDuchenne Cares Physical Therapist Certification Program Provides Specialized Training for Caring for Duchenne Patients

CureDuchenne, the national nonprofit dedicated to finding a cure for Duchenne muscular dystrophy, today launched the CureDuchenne Cares Physical Therapist Certification Program...

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Abilities Expo Video Blog

Duchenne Families Travel Far to Attend CureDuchenne Cares' September Workshop

On September 18 and 19, CureDuchenne Cares hosted a successful workshop in Chattanooga, TN. Often referred to by the locals as the "hidden gem of Tennessee," Chattanooga is the fourth largest city in the state and is located about 10 miles away from its neighboring state, Georgia...

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News
Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne Names Dr. Jak Knowles as Vice President Medical and Scientific Affairs, Managing Director of CureDuchenne Ventures

CureDuchenne announced that Jak Knowles, MD, has joined the organization as Vice President Medical and Scientific Affairs. Dr. Knowles will also serve as Managing Director of CureDuchenne Ventures, a venture fund formed by CureDuchenne that identifies and invests in high-impact Duchenne muscular dystrophy research...

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Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

Welcome Katie Mastro

CureDuchenne is delighted to announce that Katie Mastro has joined joined CureDuchenne as program services manager. She is responsible for managing and expanding the CureDuchenne Cares program, engaging with families whose loved ones have Duchenne Muscular Dystrophy, and coordinating events...

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CureDuchenne Invests Wisely: A Conversation with Debra Miller

Investing in pharmaceutical companies is not new to patient groups but very few do it as well as CureDuchenne Ventures LLC. The investment company, developed from the non-profit CureDuchenne patient organization, funds research to find a cure for Duchenne muscular dystrophy...

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Patient Lobby Groups Can Be a Catalyst for New Therapies

It was after learning that their son Hawken, now aged 18, had Duchenne muscular dystrophy, a childhood disease causing progressive muscle weakness, that Debra and Paul Miller decided to establish CureDuchenne, now a leading California-based advocacy group...

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Recent Success
CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

All-star Anaheim Ducks Captain Ryan Getzlaf Hosts 5th Annual Getzlaf Shootout to Cure Deadly Duchenne Muscular Dystrophy

Ryan Getzlaf, captain of the Anaheim Ducks hockey team, and his fellow players stepped off the ice and onto Monarch Beach Golf Club fairways once again on Sept. 13 to support the 5th Annual Getzlaf Golf Shootout to help find a cure for Duchenne muscular dystrophy...

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Upcoming Events
CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

All in for Duchenne, October 3, 2015, Sylvania, OH

The 3rd Annual All in for Duchenne to benefit Braedan’s Bridge. 100% of the proceeds from this event will fund research to find a cure for Duchenne muscular dystrophy...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

Everest Screening, October 4, 2015, Tustin, CA

Please join Tyler Armstrong for a special screening of Everest on Sunday, Oct. 4 at the AMC 14 Theater at The District in Tustin, CA. Enjoy the riveting movie, some appetizers and chat with Tyler about his seven summits journey for boys with Duchenne Muscular Dystrophy...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

CureDuchenne Cares Continuing Education Course for Physical Therapists, October 16, Woodridge, NJ

This course is ideal for physical therapists, occupational therapists, adapted physical educators and would be beneficial for others involved in the care of persons with Duchenne such as speech and language pathologists, educators, physicians, and nursing professionals...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

CureDuchenne Cares Workshop for Duchenne Families, October 17, Woodbridge, NJ

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy on October 17 in Woodbridge, NJ. The session provides updates on stretching, equipment, activity and school modification, mobility management, research and clinical trials...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

Napa in Newport, February 27, 2016, St. Regis Hotel, Dana Point, CA

Napa in Newport is Southern California's premier wine event. Napa in Newport brings together as many as 40 of Napa's best wineries and world class chef for a truly unforgettable experience. It will be held on February 27, 2016 at the St. Regis Hotel in Dana Point, Calif...

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