March 2015
Together we can Cure Duchenne!
CureDuchenne Cares Debuts in Toledo, Ohio

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The Duchenne community of the greater Toledo area gathered at Mercy Medical Center on Friday and Saturday, March 13-14, 2015 for CureDuchenne Cares, an interactive healthcare education event for parents, caregivers, patients and professionals working and living with Duchenne muscular dystrophy.

Jennifer Wallace, PT and founder of Duchenne Therapy Network, led the Friday course, educating physical therapists on specialized techniques for working with Duchenne patients. CureDuchenne and Duchenne Therapy Network are both dedicated to making specialized therapy for Duchenne patients available in every community.

On Saturday, Jennifer and CureDuchenne Chief Scientific Advisor, Dr. Michael Kelly, co-led the session for parents and caregivers. Wallace addressed physical therapy, stretching programs, recommendations for equipment, activity and school modifications. Dr. Kelly facilitated an in-depth discussion and question and answer session on current research projects, clinical trials, and therapy developments.

Attendees were encouraged to interact during both sessions; asking questions, exploring new equipment and sharing best practices.

One of the highlights of the day was the opportunity to test out and learn about new power wheelchairs and the X-Ar exoskeletal arm device.

Attendee and co-organizer, Tammy Henegar, had this to say about her experience at CureDuchenne Cares, "Cure Duchenne definitely cares. We as a family felt that they have always offered great support, the knowledge to obtain the funding and support the clinical trials that we know are truly on the edge of a breakthrough. Having Duchenne Therapy Network in Toledo was huge for the Toledo area. We gained much knowledge and expertise from the session as parents. We believe that the Physical Therapists and Occupational Therapists were extremely happy with the session learning more about Duchenne and how to help the boys that are in their care in ways that they may not have known. Thank you Cure Duchenne, Jennifer Wallace, Dr. Michael Kelly and Rachel Nelson for coming to Toledo and helping us improve the care of our boys.” 

CureDuchenne Cares and Duchenne Therapy Network would like to thank Scott & Tammy Henegar, Betsy Hyde, Mercy Medical Center, Talem Technologies, National Seating and Mobility in Toledo, Barry’s Bagels, Panera Bread of Perrysburg Ohio, the Tim Horton’s Monroe Street location and all of the wonderful families and physical therapists in attendance.

CureDuchenne Cares is an initiative focused on increasing the health and wellbeing of patients living with Duchenne through interactive education and outreach across the US and beyond. If you would like CureDuchenne Cares to come to your local community and/or you know a healthcare professional that you would like to see as a featured speaker, let us know by sending an email to rachel@cureduchenne.org.

View event photos here.

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