March 2015
Together we can Cure Duchenne!
Research
PTC Announces Translarna™ Access Program In Duchenne Muscular Dystrophy for Siblings of Patients Participating in PTC Clinical Trials

PTC Announces Translarna™ Access Program In Duchenne Muscular Dystrophy for Siblings of Patients Participating in PTC Clinical Trials

PTC Therapeutics, Inc. (NASDAQ: PTCT), announced on March 3 that it will make Translarna available for siblings of patients in certain open label PTC clinical trials for nonsense mutation Duchenne muscular dystrophy (nmDMD)...

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Japan makes strides toward stem cell therapy

Japan makes strides toward stem cell therapy

Japanese researchers report taking their first steps toward possible stem-cell-based treatments for muscular dystrophy...

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Duchenne Research Highlights from MDA Conference

Duchenne Research Highlights from MDA Conference

The Muscular Dystrophy Association will hold its 2015 Scientific Conference at the Washington Marriott Wardman Park in Washington, D.C., March 11-14...

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CureDuchenne Cares
CureDuchenne Cares Debuts in Toledo, Ohio

CureDuchenne Cares Debuts in Toledo, Ohio

The Duchenne community of the greater Toledo area gathered at Mercy Medical Center on Friday and Saturday, March 13-14, 2015 for CureDuchenne Cares, an interactive healthcare education event for parents, caregivers, patients and professionals working and living with Duchenne muscular dystrophy...

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Abilities Expo Video Blog

Abilities Expo Video Blog

The newest CureDuchenne Cares video blog is on the Abilities Expo. Jennifer Wallace attended this year's Abilities Expo in Los Angeles where companies showcased some new ideas that would benefit those with Duchenne muscular dystrophy such as accessible vehicles, alternative drive controls, new power wheelchair functions, robotic exoskeleton, and assistive technology resources...

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News
CureDuchenne Honors Dr. Brenda Wong from Cincinnati Children’s Hospital with CureDuchenne Cares Award

CureDuchenne Honors Dr. Brenda Wong from Cincinnati Children’s Hospital with CureDuchenne Cares Award

CureDuchenne honored Dr. Brenda Wong from Cincinnati Children’s Hospital Medical Center with the CureDuchenne Cares Award for her outstanding contributions to providing the best standard of care for Duchenne patients and her team’s active involvement in clinical trials for promising Duchenne therapies...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

Venture philanthropy was identified as one of the top five most promising trends in philanthropy. CureDuchenne's venture philanthropy model is featured in the 2015 BNP Paribas Individual Philanthropy Report Index published by Forbes Insight...

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Biotech’s Path to Discovery: BioMarin CEO

Biotech’s Path to Discovery: BioMarin CEO

Jean-Jacques Bienaime, BioMarin Pharmaceutical CEO, discusses his company’s bull run and news drugs to treat rare diseases, including Duchenne muscular dystrophy, on CNBC...

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Celebrity Hosts Join Second Annual Blingo to CureDuchenne

Celebrity Hosts Join Second Annual Blingo to CureDuchenne

Philadelphia Influencers Gather for a Blinged-Out Evening Benefitting the Fight Against Duchenne Muscular Dystrophy and Honoring The Children’s Hospital of Philadelphia...

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Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

Vince Young and his teammates from the 2005 National Championship Team will host the sixth annual Champions to CureDuchenne Austin Texas-sized Tailgate Party on April 11 at The University of Texas Golf Club to raise money to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy...

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MJ&M Empowers Kids

MJ&M Empowers Kids

Mack, Jack & McConaughey (MJ&M) is the joint fundraising effort of Academy Award-winning actor Matthew McConaughey, ACM Award-winning recording artist Jack Ingram, and ESPN analyst and Texas coaching legend Mack Brown...

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Support CureDuchenne in the iheartoc Giving Day

Support CureDuchenne in the iheartoc Giving Day

CureDuchenne is pleased to participate in the Orange County Community Foundation iheartoc Giving Day. The Orange County Community Foundation is hosting Orange County’s first-ever giving day on April 21-22 to help raise $2 million for Orange County nonprofits...

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Tickets on Sale for the 5th Annual Knoxville Brewfest

Tickets on Sale for the 5th Annual Knoxville Brewfest

The 5th Annual Knoxville Brewfest will be held on June 20 to benefit CureDuchenne, a nonprofit organization that raises awareness and funds research to cure Duchenne muscular dystrophy...

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Recent Success
Napa In Newport Raises $680,000 To Help Save The Lives of Boys With Duchenne Muscular Dystrophy

Napa In Newport Raises $680,000 To Help Save The Lives of Boys With Duchenne Muscular Dystrophy

Nearly 300 guests enjoyed the fun and flavor of Napa Valley wineries on February 28 as they gathered at the Balboa Bay Resort with a common goal of saving the lives of thousands of boys with Duchenne Muscular Dystrophy...

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Napa In Newport Raises $680,000 To Help Save The Lives of Boys With Duchenne Muscular Dystrophy

Luis' Left Hook

On Sunday, March 22, children and adults alike gathered to hike the trails at Sycamore Canyon Park in Diamond Bar, Calif. in honor of 7-year-old, Luis Merino...

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Upcoming Events
Champions to CureDuchenne, April 11, 2015, Austin, Texas

Champions to CureDuchenne, April 11, 2015, Austin, Texas

Save the date for the Champions to CureDuchenne Austin on April 11 at the University of Texas Golf Club. Vince Young hosts the event. This Texas-sized tailgate party will feature music, gourmet food and silent and live auction...

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Blingo to CureDuchenne, April 11, 2015, Philadelphia

Blingo to CureDuchenne, April 11, 2015, Philadelphia

Blingo is back. Save the date for Blingo to CureDuchenne on April 11 at the Rittenhouse Hotel in Philadelphia...

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MJ&M, April 16-17, 2015 Austin, Texas

MJ&M, April 16-17, 2015 Austin, Texas

Join us on April 16-17 for the 3rd Annual Mack, Jack & McConaughey events in Austin. CureDuchenne is honored to be a beneficiary...

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Carve to CureDuchenne, May 2, 2015 Branford, Florida

Carve to CureDuchenne, May 2, 2015 Branford, Florida

On Saturday, May 2 skateboarders from across Florida will take part in this one of a kind, heartfelt event, raising money for research to cure a 100% fatal form of muscular dystrophy called, “Duchenne”...

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Knoxville Brewfest, June 20, 2015, Knoxville, Tenn.

Knoxville Brewfest, June 20, 2015, Knoxville, Tenn.

The 5th Annual Knoxville Brewfest will be held on June 20 to benefit CureDuchenne. It will be held from 4 p.m. - 8 p.m. near the Southern Railway Station on the Gay Street viaduct and Depot Avenue in downtown Knoxville...

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Ryan & Jack Fight Back 5K Run/Fun Walk, April 25, Horsham, PA

Ryan & Jack Fight Back 5K Run/Fun Walk, April 25, Horsham, PA

The Ryan and Jack Fight Back event will be held on April 25 at 9:15am at the Hatboro-Horsham Library in Horsham, PA...

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Laugh for a Cure, May 7, Royal Oak, MI

Laugh for a Cure, May 7, Royal Oak, MI

Laugh for a Cure will be held on Saturday, May 7 at Mark Ridley’s comedy Castle in Royal Oak, MI at 7pm....

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