CureDuchenne - Together we Can CureDuchenne
July 2012

Duchenne Dads Climbed the Tallest Peak in Great Smoky Mountains to Raise Funds for Duchenne

Duchenne dads reach the highest peak in the Smoky Mountains.

Four dads whose sons have Duchenne muscular dystrophy climbed Clingman’s Dome, the highest peak in the Smoky Mountains, Tenn., on June 30 as part of the annual “Climb to CureDuchenne: Pick Your Peak” event. The team raised more than $11,000.

Todd Crawford, Nick Ware, Jimmy Dotson, and Brad Nance, are Duchenne dads who climbed for their sons Mackenzie, 12, Alex, 16, Luke, 7 and Caleb, 6. It is statistically remarkable that four dads, who all work in the Chattanooga information technology industry, all have sons living with Duchenne, a rare and devastating muscle disease that affects 1 in 3,500 boys. Crawford and Dotson both work at Unum; Ware works for Lawson and is a contractor at Unum; and Nance works for Northwest Georgia Bank in the IT department.

Crawford created a Climb to CureDuchenne team called “CALM Dads,” which represents the first initial of each of their sons’ names, to raise much needed funding for scientific research to find a cure for Duchenne. Crawford’s son, Mackenzie, was diagnosed with Duchenne at the age of 4. Mackenzie is part of a new Glaxo Smith Kline Phase III exon skipping clinical trial. CureDuchenne was an early supporter of Prosensa, the biotech company that developed this drug before licensing it to GSK.

CALM dads
CALM Dads make the trek to Clingman’s Dome as part of the annual Climb to CureDuchenne.

“We are hopeful that this new drug will be successful and provide a treatment that stops the progression of this awful disease long enough for a cure to be found,” said Crawford. “I hiked with a great group of dads who want to find a cure for Duchenne. We raised money to continue to fund promising research to help find a cure for our sons and the other 300,000 young men living with Duchenne.”

CALM Dads were featured in the Chattanooga Times Free Press. Click here to read the article. Click here to view the WDEF-TV interview.

Thank you Todd, Nick, Jimmy and Brad for sharing your inspiring story and climbing for a cure.