We’re writing to request your support for an amazing group of boys --
boys that have been diagnosed with Duchenne Muscular Dystrophy (DMD).
These young boys live like champions every day fighting for a disease
that has no cure.
DMD affects about 300,000 boys worldwide. They lack a protein that
destroys muscles, which means they will likely need a wheelchair by age
12, and in most cases won’t survive their 20s. This horrible disease is
Today there isn’t a cure for Duchenne Muscular Dystrophy, but on April 27, 2012 you
can help. Join us by becoming a Champion for CureDuchenne. We’ll see you
April 27 at the University of Texas Golf Club.
Saturday, February 11 Balboa Bay Club & Resort 7:30am - 12:00pm
CureDuchenne's 3rd Annual Scientific Summit at the beautiful Balboa Beach Club & Resort in Newport Beach, CA on Saturday, February 11.
Learn about the most current innovations and status of Duchenne research worldwide from the CureDuchenne Scientific Advisory Board, medical professionals, academicians and pharmaceutical companies.
The CureDuchenne Scientific Summit provides an opportunity to:
Meet and network with other Duchenne parents and family members
Hear nine of the top Duchenne scientists provide the latest updates on Duchenne research
Participate in an open Q&A session with our Scientific Advisory Board for those in attendance and those participating by Worldwide Webcast.
Scientists and Speakers:
Bill Abernethy Vice President - Market Development Prosensa, The Netherlands
Michael Kelly, Ph.D. Chief Scientific Officer CureDuchenne
Barry J. Byrne, M.D., Ph.D. Professor and Associate Chair of Pediatrics University of Florida, School of Medicine
Douglas Macdonald, Ph.D. Director, Drug Discovery CHDI Management, Inc.
Kevin P. Campbell, Ph.D. Investigator, Howard Hughes Medical Institute University of Iowa, Carver College of Medicine
M. Carrie. Miceli, Ph.D. Professor, Dept. MIMG David Geffen School of Medicine at UCLA
Jeffrey Chamberlain, Ph.D. Department of Neurology, University of Washington School of Medicine
Stanley F. Nelson, M.D. Professor, Department of Human Genetics David Geffen School of Medicine at UCLA
Justin R. Fallon, Ph.D. Professor of Neuroscience Brown University
Pier Lorenzo Puri, M.D., Ph.D. Assistant Professor, Burnham Institute for Medical Research
Eric Hoffman, Ph.D. Children's National Medical Center Washington DC
Ronald Victor, M.D. Cedars-Sinai Heart Institute Los Angeles, Calif.
Edward Kaye, M.D. Chief Medical Officer AVI BioPharma
Jennifer Hernandez, PT Duchenne Therapy Network
Champions to CureDuchenne is a prestigious charity event benefiting CureDuchenne a national nonprofit whose mission is its name to cure Duchenne, a devastating and lethal muscle disease affecting one in every 3,500 boys.
Join us on February 11, 2012 at the Balboa Bay Club & Resort in Newport Beach, California, as more than 400 community, social, sporting and business elite come together for a fun and memorable evening that includes a cocktail reception, an extraordinary menu developed by Celebrity Chef Jason Quinn and Balboa Bay Club & Resort Executive Chef Josef Lageder, an exciting live auction and live music.
For sponsorship information please contact our office at 949-872-2552.
Unable to attend, but would like to make a donation to CureDuchenne? You can also Donate to CureDuchenne:
February 6, 2011 by CureDuchenne Filed under Past Events
In September of 2010, CureDuchenne was selected as Cadillac's featured charity for Super Bowl XLV. With that one decision, Cadillac put CureDuchenne on the world stage--bringing awareness and attention to what was previously an obscure disease.
The Cadillac sponsorship resulted in the donation of a large number of tickets to February's big game in Dallas and a public service announcement featuring Green Bay Packers Defensive Linebacker Clay Matthews. Through tenacity and resolve, Matthews and the Green Bay Packers reigned as Super Bowl champions and a Duchenne hero was born. This initiative by Cadillac resulted in the most successful Duchenne awareness campaign ever carried out and raised nearly $500,000 through the auction of Super Bowl tickets.
On behalf of the entire Duchenne community in the United States and around the world, CureDuchenne thanks Cadillac, General Motors and Clay Matthews for their generous philanthropic efforts and humanitarian work.
January 27-29, 2011 by CureDuchenne Filed under Past Events
On January 28 and 29, the top 12 Duchenne researchers, biotech executives and regulatory experts attended the Second Annual CureDuchenne Scientific Summit in Newport Beach, Calif. Over the two days, discussions were held about the current state of Duchenne research and a thorough evaluation of research projects was conducted. On day one, a closed meeting was held enabling the Scientific Advisory Board to talk freely about their results, opinions and goals and to overlay CureDuchenne’s specific goals. This process is a key component in CureDuchenne’s unprecedented success in pinpointing and funding the most promising research. Day two offered parents and the general public “Breakfast with the Scientists.” The unique forum allowed parents and the general public to hear from the panel of distinguished scientists and to ask questions. The session was webcast worldwide.
Dealing for Duchenne Celebrity Poker Tournament Raises Over $200,000
June 21, 2010 by CureDuchenne Filed under Featured, Past Events
This year’s “Dealing for Duchenne” Celebrity Poker Tournament was a smashing success! We had record numbers with over 450 people in attendance. The night’s event helped to raise more than $200,000 that will go towards UCLA DMD Research & Clinic. This is very big news for everyone affected by DMD here on the West coast and Southwest region.
Special thanks go to Amy & Chris Martin who chaired the event. Amy & Chris are experts at putting together an amazing team and making a perfect evening happen. Thank you to everyone involved!
If you would like to donate to the UCLA DMD Clinic, please click here: