December 2016
Together we can Cure Duchenne!
Letter from Founder
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Letter from Founder

As the holidays approach and 2016 draws to a close, we reflect on our journey together over this past year. With each step toward victory in finding a cure for Duchenne, we enthusiastically took that step together...

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Year End
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Give Hope

With your help, the first treatment for Duchenne muscular dystrophy was approved by the FDA this year. This treatment, a CureDuchenne funded project, will help 13% of children with Duchenne...

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Give While You Shop

Give a percent of your Amazon purchase to CureDuchenne this holiday season by making your purchases on Amazon Smile. Amazon Smile donates 0.5% of all qualifying purchases to the charity chosen by buyer...

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Research
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CureDuchenne Ventures Invests in TRiNDS to Provide Clinical Trial Solutions for Neuromuscular Disorders

CureDuchenne Ventures, LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced December 19 that they invested in TRiNDS, LLC, a new contract research organization born from the Cooperative International Neuromuscular Research Group (CINRG) academic consortium...

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Pfizer Clinical Trial Update

CureDuchenne is pleased to share the following updates from Pfizer pertaining to the on-going multicenter Phase II clinical trial of the investigational compound, domagrozumab (PF-06252616) in boys with Duchenne muscular dystrophy (DMD)...

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We need your help to advance a treatment to clinical trials for rare, Duplication 2 mutations!

CureDuchenne has always been focused on finding and funding treatments to help EVERYONE affected with Duchenne, and to TREAT THE WHOLE DISEASE. We are very proud of our comprehensive portfolio of research projects and we continue to be the research leader for the Duchenne community...

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CureDuchenne Cares
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Orthopedic Care for Those with Duchenne

Dr. Robert Kay from Children's Hospital of Los Angeles spoke at the CureDuchenne Cares Family Summit on orthopedic care for those with Duchenne. Watch the video for information on orthopedic care (both non-operative and operative) of common problems in Duchenne, particularly those involving the legs and spine. Scoliosis, surgical indications, timing and techniques are discussed...

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News
Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

Join the Fight

Green Bay Packers Linebacker Clay Matthews wore customized CureDuchenne cleats as part of #MyCauseMyCleats campaign. Learn more about Clay’s involvement and support of CureDuchenne in this The Players’ Tribune article...

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Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne Aims for a Treatment for the 87%

It has taken decades, millions of research dollars, heartache and hopefulness to reach a critical milestone of the first FDA approved pharmaceutical treatment for those with Duchenne muscular dystrophy...

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Vince Young Hosts Champions to CureDuchenne Event to Find a Cure for Duchenne Muscular Dystrophy

Elite Napa Wineries Visit Orange County for the Third Annual Napa in Newport on March 4

The date for the highly anticipated 2017 Napa in Newport Wine Auction has been set for March 4 at the Ritz-Carlton, Laguna Niguel...

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Upcoming Events
CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

CureDuchenne Cares Workshop for Families, January 28, 2017, Irving, TX

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy on January 28 in Irving, Texas for family members and caregivers at the Residence Inn Dallas DFW Airport South/Irving - 2200 Valley View Ln, Irving, TX, 75062...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

Napa In Newport, March 4, 2017, Laguna, Nigel, CA

Reserve the date for Napa In Newport on March 4, 2017 at the Ritz-Carlton, Laguna Niguel. Napa In Newport brings together 30 of Napa’s most distinguished wineries to Orange County for an extraordinary wine and culinary experience...

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CureDuchenne Venture Philanthropy Model Featured in Forbes Insight Report

Champions to CureDuchenne, April 8, 2017, Austin, TX

Save the date for the Champions to CureDuchenne gala on April 8 at the University of Texas Golf Club. Join us for a magical evening to find a cure for Duchenne muscular dystrophy. The event includes cocktails, dinner, casino, live and silent auction...

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